Helping to bring awareness to glioblastoma

Welcome to the website of the Alison Fracella Research Trust (AFRT).

We are a registered UK charity, formed in 2005 specifically for the funding of research, treatment and elimination of a particular brain tumour known as Glioblastoma. We exist for sufferers, families and all health professionals dedicated to the treatment and care for this form of brain tumour, but recognise that all forms of brain tumour are worthy of further analysis, research and information dissemination.

Following personal tragic experience, we decided to establish this charity and to immediately make available to others any knowledge that we had gained.

On our journey, as a suffering family and group of friends, we found it virtually impossible to go to a “one stop shop” to find out more about a condition that we had never previously heard of. We hope therefore that this web-site in some way overcomes the previous shortfalls we encountered and that this single repository of information provides knowledge that all people connected with brain tumours crave for.

Is this just another web-site? Yes and we make no apologies for that. Is it accurate? Yes, it needs to be. Is it useful? That is for others to determine, but remember that brain tumours wait for no one. Speed is paramount in diagnosing and treating any form of brain tumour. Therefore having one point of  reference in a web-site like this facilitates that speed.

We welcome additional content, technical support, funding, applications for research sponsorship and advice in order that we may all improve our global understanding of this tragic condition. We really are dedicated to and passionate about passing on all information concerning Glioblastoma and we are determined to provide as much support as possible to sufferers and their families.


Glioblastoma multiforme (GBM WHO grade IV) is the most commonly occurring and most malignant brain tumour, characterised by extensive infiltration of the brain …..

Brain Tumours

Being diagnosed with a brain tumour can be a frightening experience, with frequent association with the sense of hopelessness that comes when unexpectedly faced with a little known but formidable …..

The Trust

The Research Trust was formed in memory of Alison Clare Fracella, our beautiful, feisty and enigmatic daughter who sadly died after a year long battle against the most vicious form of tumour …..

We are proud to support

The Institute of Cancer Research
The Royal Marsden NHS Foundation Trust

Help us fund life saving research