May 2017
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Newsletter May 2017

TO ALL OUR FRIENDS: ONCE AGAIN THANK YOU SO VERY MUCH!!

A very warm welcome to our latest newsletter and a huge,huge thank you to everyone who continues to support our cause.

At the end of March the Trustees were made very welcome at the Royal Marsden Hospital where, thanks to your generosity and on behalf of everyone who supports us, we presented the Neuro- Oncology Research Team with a cheque for another amazing £10,500!!!! Thank you all so very much!! Your kindness and compassion in continuing to support us is helping to make a real difference to the furthering of research into a disease which claims the lives of more people under the age of 40 than any other cancer.

Sue Kettlewell, Andy Balchin, Frank Saran, Veronica Balchin, Rob Kettlewell, Graham Panton, Sara Kashani,Kathy Greenwood ,Kate Bedborough and Danuta Plumer at our recent cheque presentation.

Kathleen Bice Fundraising Manager at the Royal Marsden says in her letter of thanks:

"Dear Trustees,

Thank you so much for your generous donation of £10,500. Your gift will support the incredible research led by Dr Frank Saran and his Neuro-Oncology Research Team at the Royal Marsden. I hope you enjoyed your recent visit. Dr Saran and his team were delighted to tell you more about their current work and the impact of your support. Without the support of people like you the team would not be able to continue to make progress towards the next big breakthrough for brain tumours like Glioblastoma.

This generous sum will be for the benefit of the Royal Marsden Cancer Charity Ė Glioblastoma Research Fund. As you heard from Dr Saran your gift also helps supports a number of research staff including nurses and trial co-ordinators. Once again please accept our sincere gratitude for all your enthusiasm and dedication in supporting our work. It is thanks to extraordinary people like you, your fundraisers and your supporters that the Royal Marsden is able to remain at the forefront of cancer treatment and research. At the Royal Marsden we are dedicated to making life better for people with cancer and keep striving towards a future without it."

Our grateful thanks to Dr Niamh Coleman for all her hard work on our behalf. We have been helping to fund her Research Fellowship over the past two years and send her all good wishes for the future. Her role is now being taken over by Sara Kashani (4th from right in the photo above) and we are sure that she will continue with the excellent work.

Niamh writes:

Dear Team and supporters,

As I am coming the end of my time with the neuro-oncology unit I wanted to write to thank you for your continued support.

Your support and encouragement has been invaluable for my oncology training, and remains very much appreciated. I am delighted to say that my time in the unit, as well as resulting in an improvement in my clinical knowledge in neuro-oncology, has translated into a number of projects with the neuro-oncology unit and the Phase I unit. These have resulted in poster presentations at the annual American Society of Clinical Oncology (ASCO) meeting in Chicago 2016, the American Association for Cancer Research (AACR) annual meeting 2016 and the 12th meeting of the European Association of Neuro-Oncology (EANO) 2016. These projects have been written up for publication, the full details of which will be provided in the near future.

We have improved links with the phase I unit, and increased trial participation with the Drug Development Unit in the Royal Marsden. We have also had an increased number of phase Will trials available in the neuro-oncology unit and with the dedicated research team, we have increased clinical trial participation in this setting. For example, in PARADIGM the phase I/II trial looking at olaparib and radiotherapy for patients with Glioblastoma, we are the highest recruitment centre in the UK.

Together with the research team, we have been able to provide a tailored patient-directed service, where I have been essentially the immediate physician-contact for all of our clinical trial patients. I have enjoyed this dedicated service, and I believe the patients have also benefited from this personalized-approach.

My involvement in the pre-clinical EGFR-mutated Glioblastoma laboratory work with

the Molecular Addictions team, led by Dr. Igor Vivanco, led to a further interest and

appreciation of science. This this inspired me to learn more about the biology of

cancer, and led to my application for the CRUK Clinical Fellowship at the ICR,

which I obtained successfully following a competitive interview process. I am due to

commence my academic research PhD with the Molecular Addictions team in January

2017.

This would, without a doubt, not have been possible without the support and influence

of this neuro-oncology fellowship, and as such I am incredibly grateful for the support

that this has offered me.

I hope to continue to contribute to cancer research, knowing that my time in the

neuro-oncology unit has been indispensable in shaping my career. I am sure the

physician that follows me will continue to make valuable contributions to the unit and

to the complex care of neuro-onclogy patients.

With warm wishes, Niamh

FUND RAISING

WOW!! A WHOLE YEAR OF FUNDRAISING FOR THE TRUST!!!

We are so very grateful to two wonderful people Brian and Jenny Tunstill for their dedication and commitment to undertaking a whole year of fundraising for the Trust.

Brian in his capacity as Seniorís Captain for the Birch Road Golf Club at Colchester together with his wife Jenny have raised a staggering £1480 for us. Thank you both so very much.

During Brianís year as Seniorís Captain Brian and Jenny organised numerous events including the Captainís Charity Golf Day which was a great success. Over the course of the year they organised many raffles, Bring and Buy Sales and a "guess the weight of the cake" made by Jenny together with selling many other delicious cakes made by herself.

Brian organised a cheque presentation to the Trust at the Birch Road Golf Club in June. Brian (third left) is pictured here presenting the incredible amount raised together with Trustee Roy Death and his wife Sue, ourselves and Brian Towers (first left and incoming Seniorís Captain) We were made very welcome and after the presentation we all enjoyed a delicious lunch together in the Club House.

59 CLUB LOTTERY

Our monthly lottery continues to raise a considerable amount for us each year and be a valuable source of funding.

We are very fortunate to now have 59 members of the Club since the National Lottery extended itís numbers from 49 to 59. The monthly prize money is now £59. A very warm welcome to our 10 new members and our very grateful thanks to everyone who continues to support us through having a ticket (subs due again very soon!) and also to the very kind people who have donated their winnings back to the Trust.

During the transition from 49 to 59 two numbers in excess of 50 were bonus balls and therefore an extra draw was made with a prize of £98. Our thanks to Brian Tower (Seniors Captain for 2016/17) who on the presentation day at the Birch Road Golf Club drew the winning ticket number. The lucky winner of the ticket drawn (No 25) was David Llewellyn-Jones winning £98. Congratulations David!!

THANK YOU SO MUCH ANGEL DELIGHTS!!

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Everyone at the Alison Fracella Research Trust would like to say a sincere thank you to Helen Golland (the angel at Angel Delights!) for everything she did to make our Cream Tea event on June 26th so successful and enjoyable. Special thanks also to her team of her daughter Charlotte, Jo and Becca for all their help on the afternoon. A big thank you to Helenís husband Simon for printing the tickets and posters for us. The colourful bunting (thank you so much Ruth) Helenís vintage china and cake-stands added to the occasion and everyone said that they had a wonderful time. Helenís scones (freshly made by her that morning) laden with her home-made jam and clotted cream were a real treat. Thank you so much to everyone who made cakes for us to sell during the afternoon. Helen, so kindly and so generously, donated all the ticket money to our cause. After expenses we made £749 which is a fantastic amount. Every penny will go to the Royal Marsden Hospital where the Trust is supporting brain tumour research. A huge thank you to Helen, to Sue and Roy, to Carol and Neil and to Emma for all their hard work and to everyone who came and gave us such generous support. Thank you all very much.

Our Cream Tea in June was greatly enjoyed by all !!

A Big Thank You to Hadleigh Community Choir

The trustees of the Alison Fracella Research Trust would like to say a very big thank you to everyone at the Hadleigh Community Choir for their very kind donation of£175 from the proceeds of their recent Summer Concert on July 2nd. As usual it was a wonderful Concert which we thoroughly enjoyed. Alison loved her music and singing and so the donation is particularly appropriate. Thank you all so very much for thinking of us.

 

 

 

QUIZ NIGHT !!

A huge thank you to everyone who came along to the Ansell Centre on Saturday 19th November to give us such fantastic support at what was our 5th joint Quiz Night. We once again had a packed house for the event and everyone said what an amazing evening it was with lots of fun and laughter. We seem to have found a winning formula with our ploughmanís supper too! On the night, after expenses, we raised an amazing £1,032 which we have divided between our two charities. Almost every penny raised will go towards the work we are supporting as our charity has minimal administration costs.

A huge thank you to Avis Printers for printing our tickets and for selling them for us in the shop. Special thanks to Sue and Roy for all their hard work and also to Paul and Maria and to Carol and Neil. Many thanks also to the people who were so generous in their donations of the many fantastic raffle prizes too numerous to mention. A huge thank you to Orwell Lady Cruises, to Hadleigh Tyres to Brett Vale Golf Club, to the Hadleigh Ram and to Mandy at the Lavenham Beauty Gallery.

Special thanks also to Paul and Marion for once again donating a dayís sail on the River Deben on board "Wakey Wakey." It would be fantastic to see everyone again next year! Please save the date- Saturday 25th November 2017!

Thank you again to everyone who gave us such very generous support.

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The Winning Team

We were so very sorry and saddened to hear of the passing of Susan (pictured in the foreground of the winning team above) she will be sadly missed and our hearts go out to Christine and Neville and to Shannon and Fletcher. Susan was a regular at our events and showed great courage and determination in the fight against her brain tumour. Our very grateful thanks to her family in donating money raised in Susanís memory to the Trust.

Once again our very best wishes and many thanks for your continued support. We really appreciate everything that you are doing to help our cause. Our grateful thanks also for the many donations we have received over the past year. Every penny of the money raised goes towards research into Glioblastoma at the Neuro-Oncology Dept at the Royal Marsden Hospital.

With all good wishes and sincere thanks from the trustees:

Andy Balchin, Roy Death, Graham Panton and Sue and Rob Kettlewell

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